Responsibilities
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"Increasing knowledge of the human genome must never change the basic belief on which our ethics, our government, our society are founded. All of us are created equal, entitled to equal treatment under the law. After all, I believe one of the great truths to emerge from this triumphant expedition inside the human genome is that in genetic terms, all human beings, regardless of race, are more than 99.9 percent the same" -Bill Clinton
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The major fallout of the HGP may lie in the sensitive genetic information leaked to the insurance companies and prospective employers, as they may refuse coverage or jobs, or charge higher if they find a client genetically vulnerable to certain ailments.
Knowledge about the chance of future diseases can lead to an emotional and psychological impact on the patient. Also, effectively introducing therapies into clinical practice is a responsibility on part of the doctor.
The concerns associated with the HGP led to the formation of the ELSI committee, which, in 1997, received $11 million of the HGP budget. It uses research on the ethical, legal and social implications of genetic and genomic research for individuals, families and communities, and tries to fix the fallacies based on this research.